Questions and Answers
Responses are provided as general educational resources and should not be interpreted as diagnoses, prognoses, or treatment suggestions. Information and perspectives represent the views of the individual author(s); Can Do Multiple Sclerosis is not responsible for the accuracy or currency of the responses. Readers should consult with their healthcare team.
I'm newly-diagnosed and don't know where to start. I think I need a road map!
Rosalind Kalb, PhD
Can Do MS Programs Consultant
You have already taken the first step by reaching out. Although each person’s experience with MS is unique, there are some very important things you can do to get yourself onto a comfortable path:
- Find an MS provider you like and trust and develop your treatment plan.
- Learn about MS and the symptoms it can cause – but get your information from a reliable source like the National MS Society, Can Do MS, and other MS advocacy organizations.
- Give yourself time to deal with all the feelings that go with a new diagnosis – fear, grief, anger, or whatever else you might be feeling. There are many resources available to help you.
- Learn about your options before you disclose your diagnosis in the workplace.
- Think about your employment and financial future – it’s never too early to begin planning for unpredictability.
- Gather your support network. Growing and nurturing a network of supportive individuals will be an essential part of your life with MS
The best place to get more information about each of steps is with the National MS Society’s Knowledge is Power series. Each module of the series includes videos, publications, worksheets, and links to relevant Web pages and resources, and each is presented by others living with MS.
I also encourage you to check out the Can Do MS programs, webinars, and coaching opportunities. You don’t need to do this alone!