Responses are provided as general educational resources and should not be interpreted as diagnoses, prognoses, or treatment suggestions.  Information and perspectives represent the views of the individual author(s); Can Do Multiple Sclerosis is not responsible for the accuracy or currency of the responses.  Readers should consult with their healthcare team.

filtered by: Diet, Exercise & Healthy Behaviors and "bowel" (remove)

Psychologist Response:

Roz Kalb, PhD
Senior Programs Consultant, Can Do MS

Bladder and bowel symptoms are very common in MS. Damage caused by MS in the brain or spinal cord may interfere with nerve transmissions that control bowel and bladder function. These symptoms not only have a significant impact on your quality of life, but they can also impact other MS symptoms. For example, constipation, which is the most common bowel symptom in MS, can increase spasticity (stiffness) in your limbs and interfere with bladder function. Bladder symptoms can increase your risk of falls, disrupt your sleep, and make you more susceptible to bladder infections. And these infections, which can elevate your core body temperature, can make other MS symptoms like fatigue, weakness, pain feel worse. So, it’s very important that you report these symptoms to your MS provider and have a thorough evaluation.

As I mentioned, the most common bowel symptom is constipation. Adequate fluids, a diet high in fiber, a regular bowel schedule, and exercise are the best strategies for managing this symptom. Occasionally, loose stool may leak around a hardened, impacted stool. While this may appear like diarrhea, it is actually related to constipation and can be addressed by reducing the constipation. Diarrhea is uncommon in MS and is typically caused by another condition. Loss of bowel control can also occur in MS. The most effective strategy for managing bowel symptoms is to establish a regular bowel routine. I recommend that you read Bowel Problems – a publication from the National MS Society for a detailed description of bowel symptoms and the strategies used to manage them.

The most common bladder symptoms include a failure to store urine effectively, an inability to fully empty the bladder, or a combination of the two. I recommend that you read Urinary Dysfunction in MS, another booklet from the National MS Society for a description of the symptoms, the strategies used to diagnose them, and the treatments that are used. Managing these symptoms is important for your quality of life and your health, so don’t hesitate to discuss them with your provider.

Nurse Practitioner Response

Tracy Walker, NP, WOC

Can Do MS Programs Consultant

So … It depends! A glycerin suppository may be enough. It works by lubricating and gently stimulating the lower GI tract to empty. However, a lot of folks need a stronger chemical stimulant such as Dulcolax suppositories. Those can be purchased over-the-counter, but sometimes they do not dissolve quickly enough to provide fast reliable action. There is another version called the magic bullet that is Dulcolax, but in a faster dissolving form. If your pharmacy does not carry those, you can purchase them online. If those don’t work some folks will try mini liquid enema’s such as enemeez.   Every person is different, so you should ask your nurse, gastroenterologist, or other healthcare team members. 

Nurse Practitioner Response

Gail Hartley, MSN, NP, MSCN

Can Do MS Programs Consultant

A bowel retraining program can be very helpful for persons who have chronic constipation and irregular bowel movements, as well as for persons who have frequent loss of bowel control.  Retraining your bowel involves trying to go to the bathroom at the same time every day to train your body to have regular and predictable bowel movements. It may take several weeks to establish a new routine, but it is possible with consistent effort and the help of a nurse and other healthcare team members. 

Before starting a bowel program, discuss your current symptoms (ie constipation, incontinence) with your HCP.  Review your current dietary habits--are you getting enough fiber in your diet? Are you drinking enough fluids? Are you getting any exercise?  Are there medications that could be contributing to your symptoms?

The National MS Society has some great resources on managing bowel issues and can connect you with local experts who can help develop a retraining program.  I'd also recommend this checklist of ways to regulate your system, as well as this article and webinar on bowel and bladder issues, all created by fellow Can Do MS Program Consultants.  You can also access materials that we use at the 4-day CAN DO Program during the bowel and bladder workshops:

Bladder Instructions 2017

Bladder Slides 2017

I hope you find these resources helpful and you can take steps to improve your bowel timing and overall quality of life.